Information, help and advice

Hiya, just to show we have made top billing on a local E newsletter which will now go out to over 450 Business`s in and around Torbay. We met with the MD of this company last week who was so impressed with the work of the Torbay Dementia Action Alliance that he has decided to help us in any way he can. Its also a company that trains in all aspects of Health and Safety as well, and has kindly agreed to include our documents in THEIR training, therefore making that company also Dementia Aware. they will then pass the details on to us and we will award the badge !! I am so pleased with this as it will step everything up a gear and get the job done more efficiently. ON-WARDS AND UPWARDS MY FRIENDS !!

Please click on link to take a look , Best wishes, Norrms and family xxxxxxxxxxxxxxx
Hiya , i was contaced and asked by a Dr of Psychology from Sheffield University earlier this week what we, here in Torbay think a Dementia friendly community is, and how we are building one here in Torbay, this was my reply which i hope you will find not only interesting but helpful, best wishes, Norrms and family
.Even though we have to fundamentally change the way people think and the culture surrounding Dementia it doesn’t have to be to complicated or bogged down with bureaucracy and risk assessment’s . We need to put people on the ground who will approach these businesses and explain to them how simple it really is, this is our approach.We enter every business armed with three documents only. One is the LOGO of the Torbay Dementia Action Alliance which we have had designed for free. The other`s are two documents, A Guide To Dementia By the Alz soc, , and What Is Dementia, written by myself. . We explain who we are and explain that all we want them to do is to make sure that them and all their staff read the documents, understand them and if there are any questions there are phone numbers to contact for any queries (Alzheimer’s society Hot line and local Alz soc office) we explain that we will call back in two to three weeks, depending on the size of the business and once awareness has been raised amongst all staff they will get a badge to display in their window which states they are “Dementia Aware”

The words “Dementia Aware” is very important as we are certainly not a training consultancy firm nor profess to be so. We are not in the business of Training staff up to level 2,3or 4 in NVQ dementia, that is not their job, but when we explain that i was myself diagnosed with Dementia aged 50 and its not just an age related disease but a Degenerative disease of the brain and could quite possibly happen to anyone at any time, they are always taken aback.

Our aim in Torbay and hopefully UK wide is to create Dementia friendly communities which, in turn, will massively improve all aspects of people lives who are touched by this awful disease. More understating creates compassion and also reduces stigma. We did it thirty years ago with Cancer and more lately with the likes of HIV and heart problems, so there is no reason why we cannot do the same with dementia. We are involving the likes of Banks, supermarkets, local shops,cafes, schools, bus companies, colleges, coach companies, the holiday industry, Hotels, of which we have many here,Estate agencies, hairdressers, barber shops, Bingo halls, social clubs, pubs, Main post office, Cinema`s, theatres and everywhere where people visit during their everyday lives. This can only be done by creating alliances and volunteers willing to do this, but the biggest advantage we will ever have is to include those with early onset Dementia like myself. We can shape the future for people to come and provide better service and hopefully eventually rid this disease of the awful stigma that is attached to it.

Here in Torquay (in itself a huge place and not to be mistaken with TORBAY as this consists of Torquay, Paignton and Brixham) ) we are already on our way in creating the UK`s first ever Dementia Friendly small community as we have support from over 70% of buisnessss in the St Marychurch area of Torquay and 40% of Buisiness of the Babbacombe area of Torquay, we are hoping to completle the 100% in both areas in the coming months !! The beauty of this is there is no real time limit, but the sooner the better as far as we are concerned and we are hoping to be able a Dementia friendly commiunity very soon.

Please let me know your thoughts on this as i would appreciate all feedback
Lots of love, Norrms and family

Hiya, as you know Elaine and myself are working alongside the Dept of health and have been campaigning for four years now to have an information leaflet speacially designed to give to those who are newly diagnosed with Dementia and their loved ones and carers. Please click on the link to see the proto type we have come up with. It has all the relevant info on it and more imprtantly (In my eyes) a reminder to make a follow up appointment, as shortly after the news has sank in, so many questions appear in your head (I KNOW) this will hopefully allay the feeling of being left out on your own. As always we need the go ahead for funding so please wish us luck and cross everything !!LOL All our love, Norrms and family xxxxxxxxx
http://www.scribd.com/doc/98627559/GP-Dementia-Leaflet

Link to all my writings on care space

http://www.communitycare.co.uk/carespace/members/Norrms/default.aspx

Hiya all, this is a short film that whas shot on the day, in Torquay on dad day Sept 17th 2011, my dear friend Callum who did this for us , this was is first time doing anything like this, i think he has a future in films, what do you think,Please enjoy, we did LOL Best wishes, Norrms and family xx

This is a very short video of our day in Torquay on DAD day, please enjoy, xxxxxxxxx

OUR DAY, IN TORBAY, ON DAD DAY

Good morning  this is our site and its the fastest growing Dementia awareness site on facebook, please join us, best wishes, Norrms and family
 Lewy Body`s Society
http://www.facebook.com/pages/The-Lewy-Body-Society/111252483728?sk=wall
Living well with Dementia booklet
Booklet helps medical staff learn about their patient | Alzheimer’s Disease International: http://www.alz.co.uk/icaniwill/library/medical-professionals/dementia-friendly-office/living-well-booklet#.Tw6aBZdT9q4.twitter via @AddThis
HOW COOL IS THIS ??? We now have our own webpage on the website of our very own local radio station Palm fm 105.5 which broadcast`s all over Torbay and some parts of Devon, thank you so much Palm FM, please take a look xxxxxxxxx
http://www.palm.fm/p/whats-on/dementia-awareness

Hiya All, this is the conference i am speaking at in March 26th 2012, would be lovely to see as many of you there as posssible, especially those of you who live in and around that area, Norrms and family xxxxxxxxx

Dementia 2012 conference Monday 26 March 2012, 10-3.30pm, Hotel Russell, London The conference will launch the first report in a series that will chart UK progress towards living well with dementia and the road ahead. Findings are based on the outcomes that matter to people with dementia and carers and include how well people with dementia are living within their community.

This is your chance to be the first to hear these findings and help debate the dementia agenda for the year ahead. Dementia is a societal challenge and the conference is for all those who would like to join the conversation about good quality of life for people with dementia in 2012 and beyond.

This is the direct link to the page on the Alzheimer’s Society is: http://www.alzheimers.org.uk/dementia2012

It’s not often I say this, but this is a story sent to me by a friend that must be told and SHARED!!!!! it’s a few pages long, but so important for people to read this and comment on, Norrms

Sleep Apnoea…Dementia/Alzheimer’s/Oxygen – Norrms – Member blogs – Social Work Blog – Care space from Community Care: http://www.communitycare.co.uk/carespace/blogs/norrms/archive/2011/11/01/sleep-apnoea-dementia-alzheimers-oxygen.aspx via @Add This

WHAT WORKS CARD`S

THERE IS NOW NO EXCUSE!!!!

To all Health Authorities, Care agencies, Social services, retail Businesses, Tourist industry, and public travel services and all the other professionals in the field of Dementia both here in the UK and worldwide, there is now no excuse as to why you cannot involve people with Dementia in your services and plans for the future!! Here are the tools for you to use, we, myself included who have a diagnosis of dementia along with some very dedicated professionals have produced these for you to use. Please follow the link and look for “Involving People with Dementia resource cards”  As I said earlier, there is now NO EXCUSE for not doing so, thank you, best wishes, Norman Mc Namara

>  People living with dementia in the South West launch ‘What Works’

> resource pack – South West Dementia Partnership: http://bit.ly/vcI8pC

4 thoughts on “Information, help and advice

  1. Beautiful website Norm1957! I would like to study further to specialize in young dementia. I really like your Poem on the website. Could I use it with your name and website address under it?

    Best with all you do,

    Lucie

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