This is without doubt one of the most powerful videos i have seen so far, beware, hankies at the ready folks, thank you so much, Norrms xxxxxxxxxxx
A Long Way to Go
But we are
I have just come back from doing two, 1 hour workshops at our local college where I spoke and answered questions on Dementia, my diagnosis , my thoughts for the future ect to two student groups who are taking “Social Care” as their curriculum.
As always, just before the end of my presentation I told them that I had, myself been diagnosed four years ago, and the following two minutes there was almost complete silence apart from very audible sharp intakes of breath!!
The questions of “HOW WHERE and WHEN” came thick and fast after and the most asked question was “What’s the difference between Alzheimer’s and Dementia? I had to explain to them all that DEMETIA is just the Umbrella term for all types of Dementia`s such as Alzheimer’s, Lewy Body`s, Frontal Lobal ect and I explained it in the way just as there are different types of Cancer, but its still cancer at the end of the day.
The most interesting part was that last question I have just mentioned (What’s the diff) was asked more by the Tutors than the Students?? Mmm, me thinks there is so much more to do yet, but please don’t let this distract from the awareness that WAS RAISED THIS MORNING. TWO SETS OF Students and TUTORS now know that it’s not an AGE RELATED disease, they went away knowing that people can still have a great quality of life with this illness and they will always remember the day Dementia came into their world, but hopefully left with a far better understanding of it.
Best wishes, Norrms and family xxxxxx
I DONT WANT TO DIE!!
I don’t want to die; I just want to live,
I have much to do; I have so much to give,
I sit here and I think, what am I to do?
How to plan my day, how do I get through?
God I hate Dementia!! I get so angry and annoyed,
Because I know, my illness, I just can’t avoid,
Every day when I wake, it is on my mind,
Why is my life sometimes, so cruel and unkind?
I don’t want to DIE, of that I am so sure,
Please, come on you guys, will you find a cure?
Sooner rather than later, I’m sure you understand,
I have much more to do, as I walk this land
(Just needed to get that off my chest, hope you understand)
I will write a poem, private, just for you,
For a small donation,
… Please donate to this link,
Is its destination
I will write whatever you want,
About your good times or your sad,
Then you can keep this personal poem,
From this Bolton Lad,
Every penny that we make,
Of this you can be sure,
Will go straight to Lewy Body`s,
And hope we find a cure,
So come on guys, help me out,
So i can use my brain,
Before Dementia comes along,
And turns my sun to rain.
Just let me know what you want me to write about, i will write it and if you like it then you can please make a small donation to the link in the poem, whatever you think it`s worth. As you can see by the link every penny will go to the Lewy Body`s society just giving page
Best wishes, Norrms and family xxxxxxxxxxx
Maxi WeekendsSunday 6th May 2012
Club Rainbow, Torquay (Rainbow International Hotel)
Sounds of motown with Roy G Hemmings (Ex original Drifters member)
Tickets only £6 each with £1 donated to The Lewy Body’s Society from each ticket sold
Doors open @ 8.30pm
Buy tickets online by visiting www.maximoo.net/eventlisting
Limited number of tickets available so early booking advised
Night Sky Of Hope
This was how Dementia Day was created on January 3rd 2011 and the story I wrote that started it all. It’s also the reason for this year’s Logo of a Star, for all of you who haven’t read this before, please enjoy
NIGHT SKY OF HOPE
Hiya, where we live in Torquay we are quite fortunate as in we live in a nice flat in an old Victorian house. Because of this we have floor to ceiling windows in our front room so the views are quite clear. At night time this especially so and last night I found myself staring at the night sky.
Its complete blackness and enormity made me feel very humble and the more I thought about it the more I thought about how we look at dementia. The darkness and blackness descends without warning, with no sound, omitting most of the brightness of the day. It creeps up on us daily and there are no warning signs, no alarm bells or “Symptoms” as such, in the early stages of the night times and before you know it, it’s completely dark!! Does this sound familiar??
Mmm, very familiar to me, BUT!! (And as you know there is always a BUT with me LOL) when you look into this sheer darkness what also can you see?? What I saw last night was the shiniest star I have ever seen, maybe I am noticing more these days, some say you do when you’re really ill, but through all that darkness and density was this star, shining and twinkling in the depth of blackness like I had never seen before. Against all the odds, there it was, shining a light that started millions of years ago but still living on pulsating in the night sky.
Then, as I looked around, there was another, and another, and another!!!!! My heart skipped a beat and I felt as if I was an excited child all over again, WHY??? Because in my mind all these wonderful wonderful shining stars were rays of hope!! Each and every one of them held the hope and prayers of everybody who is touched by this awful illness, every single one of them was somebody who had the hope and faith that one day a cure would be found, and this was the universes way of saying HOLD ON!! A Cure is coming and coming soon!! Every star that shines so bright is the light of belief that we all hold on to so dear.
So the next time you take a look up, and stare at the wonderment of the universe, just give thanks, that all the lights you see will be shining so much brighter in the very near future.
Within 24hrs of posting this story, Cher from Wiltshire (on the poster) rang me and within twenty minutes “Dementia Awareness Day was born. That was on the 3rd Jan 2011, the first D.A.D day was celebrated on the 17th Sept last year. This year’s will be on 15th Sept.
Imagine this, you are in a race, as the starting pistol goes off it’s a bit of a sluggish start until you seem to grow (as in Life) with confidence until eventually you get into your stride. For a short while you are watching all those around you in this race, learning and trying to understand their tactics (early years)
Then, just as you think you have everything under control along comes someone pushing and shoving you out of the way (Your teens) you don’t like this as you think you are the best at everything and know far more than anybody else. Eventually, you realise you don’t and you come to understand that in life you have to make the best of every day and continue to learn as much as you can.
And so the race settles down again and goes at quite a leisurely pace until you realise to will have to run a little faster, you have to speed up to keep up with everybody else and make sure you have enough energy to see this thing through so you’re not letting yourself down or any of those around you (Family, and children ) After a while you start to notice you are pulling away from the pack and doing quite well for yourself, you begin to puff your chest out, work a little harder at winning this race called life, only a few more laps to go (middle age).
“What’s this got to do with Dementia? I hear you call
Just as you turn the corner on the finishing straight (middle to old age) you hear footsteps behind you, getting closer and closer, you can feel their breath on the back of your neck. Who is this that’s getting closer and closer and trying to beat you to that glorious finishing line
As you turn to look, your worst fears are confirmed, it’s the one competitor in the race you didn’t want to see, trying to take over you and get to the winning line first, yes it’s a certain Mr Dementia, running shoes and all. You start to run faster and faster, pushing yourself every inch of the way, sometimes there is a gap between you (good days) sometimes he is right on your shoulder (Bad days) but no matter what, something deep down inside you tells you not to slow down, because if you do, you know that he will cross the finish line before you do !!
And so my friends, who wins this race we call life? Who crosses that Wonderful Glorious finishing line first, punches the air with Victory and continues on to do a Lap of Honour????
Some of us will come first and do that lap of honour, but unfortunately some of us wont, and for some of us the race IS STILL ON !!! This is one race I am in myself, this is one race that could go one way or the other, but please believe me when I say I promise this in one race I will give my all, and never give up!!
This is one race I intend to win!!!!